It’s not uncommon for individuals and families of those diagnosed with a genetic condition to be asked to donate blood for genetic research purposes. Many do, desperately hoping and praying their participation in the project will result in the discovery of a treatment or cure to help their affected child or loved one. But these families are unaware they are actually pawns in a modern day eugenics.
Deceived into believing identifying “the gene” meant hope for a treatment or even a cure, my own family participated in a blood draw about twenty years ago. Genetic research can be slow, tedious work and as the ensuing years slipped by, hope for a breakthrough dimmed.
Fast forward to April 2009 when, out of the blue, I heard from the doctor, who is considered to be the foremost expert in the world on our children’s genetic condition. He also heads the research project at the prestigious Baylor University in Texas. When he called, asking for another blood donation for the purpose of continuing the work, he told me they had run out of our samples and felt they were very, very close to discovering a completely “new” gene, unique to our family. Flickering hope reignited and without hesitation, I agreed. Soon, a package containing vials and consent forms was on it’s way to our doorstep.
Curious as to the status of the research, and since the doctor had mentioned the name of a fellow researcher at Duke University who was focused on working to discover “our” gene, I Googled. Checking online sources, I soon found a paper detailing the researcher’s work on our children’s genetic condition originating from a presentation he gave to colleagues. It was an eye-opening read. As I read, the truth became crystal clear. My hope was snuffed out, stomped and drowned by buckets of betrayal. I was stunned and bitterly disappointed to discover there’s no hope of preventing, treating or reversing blindness, physical or mental disabilities or any of the other symptoms associated with the condition. NO HOPE. Absolutely no hope, at all.
Because it’s a rare syndrome, funding is extremely limited, but beyond that and contrary to everything we were led to believe, the researchers and experts, themselves, admit the likelihood of a cure or treatment for any of the associated health problems is non-existent. It’s nothing more than a fairy tale told to desired blood donors to exchange false hope for vials of blood – potentially worth a fortune.
I learned the only expected outcome of the research described is in the development a screening test for use prenatally… to identify unborn children with the condition. Surely an end goal of enormous financial benefit to the researchers, universities, and most certainly the genetic testing and abortion industries, which is the ONLY reason why the research has continued all these years. It is fueled by their expectation of a big financial payoff down the road. No one had mentioned this fact to me… ever, and the stack of consent forms accompanying the vials conveniently omitted this information, as well.
“Their throats are open graves. Their tongues practice deception. Their lips hide the venom of poisonous snakes.”–Romans 3:13 (God’s Word Translation)
Undoubtedly, our unwitting participation in the genetic research project would eventually result in the creation of a test designed to identify this condition in unborn children and facilitate the murder of God only knows how many innocents.
This raises serious moral and ethical concerns because many pregnant women undergoing genetic testing and counseling could – and do – decide not to carry what they perceive to be a “defective” child to term. Such a decision could be based on misinformation, false perceptions, prejudice or fear about the quality of life for children with disabilities… or even unreliable test results. Prenatal genetic testing, which can now include approximately 6,000 so-called “defects”, stacks the deck against the unborn child. It puts the mother in a position of being pressured to quickly make the decision so the child can be aborted, while she is still processing the shock of the test results and fear of the unknown.
When a child is born who has a challenge, it is not always evident at birth. Often, it may be many years before the condition is apparent and a vast number of so-called “defects” are not life-threatening or even life-altering. Without prenatal genetic testing, the natural process of forging the mother and child’s bond of love is able to progress, as God intended. Someday, when the challenge presents itself, the family does the best they can to deal with the situation because the child is loved and rightfully viewed as part of themselves.
Families, like ours, with exceptionally challenged children, experience life’s ups and downs… triumphs and difficulties… joys and heartbreaks… just like any other family. Our children are normal. Just like everyone else, they deserve equal respect… and the opportunity to enjoy their God-given right to Life. These children are a precious gift from God. They are truly a blessing to our lives. How empty our lives would be without these children my husband and I deeply respect, admire, cherish, adore and love so dearly. They are our family and our life.
The very thought that our family’s blood, given in good faith, could ever be used for such a detestable, evil purpose, contrary to our Christian moral beliefs and without our knowledge or consent is unthinkable, inexcusable and absolutely infuriating. Genetic research is the new genocide. It threatens to exterminate an entire social class of people who do not fit into society’s ideal of “normal”… those who are viewed as “defective”… those who are labeled as mentally or physically disabled. It is disability racism… the extermination of an ‘undesired’ population group… which is eugenics:
“Indeed, parents of babies diagnosed prenatally with DS [Downs Syndrome] reported in the study mentioned above that 23 percent of the physicians or genetics counselors they spoke with either “emphasized the negative” aspects of parenting such children or “urged” parents to choose abortion.”–Politically Correct Eugenics by Wesley J. Smith, published in the Weekly Standard
“Still, social policy may be unable to sway a seemingly strong personal preference for avoiding children with perceived genetic defects. About 90 percent of women who learn they are carrying a fetus with the extra 21st chromosome that causes Down syndrome choose an abortion. Studies have shown that many women choose to abort for diagnoses of less serious conditions.”–Genetic Testing + Abortion = ??? by Amy Harmon, New York Times
“There are troublesome implications to those statistics and the new testing,” says Dr. Mary Mahowald, a University of Chicago ethicist. “They suggest an attitude that deems the lives of people with disabilities not worth living. They’re also troublesome because the fewer people with disabilities there are, the more likely they are to be victims of discrimination.”–Baylor Offers Fetal DNA Test Sheds Light, But Stirs an Ethical Battle by Todd Ackerman, Houston Chronicle
Upon learning the truth, I immediately telephoned the doctor at Baylor University to inform him we would NOT be a part of any effort to identify the gene, now knowing the intended use for the information would be the development of such a test – one that could and would undoubtedly be used as a “reason” to abort children. He made no attempt whatsoever to deny the facts – nor did he even bother to offer an apology for the deception.
After our conversation, I immediately followed through to ensure that our family’s past participation would likewise be purged from their files and records, along with any remaining blood samples in their possession. Had we trustingly and unknowingly contributed the requested blood to this research project – with an end result of facilitating the discovery of a prenatal test, it would have been devastating to know our family was indirectly responsible for the abortion deaths of untold numbers of innocent unborn children as well as the lifelong guilt and emotional suffering abortion wrecks on the parents’ lives. This is the face of modern day eugenics… right here, in the “land of the free”.
I firmly believe it is unethical for genetic researchers to deliberately deceive and exploit donor families by omission – but that is exactly what’s happening. The genetic research industry is deliberately deceiving potential blood donors by employing fabricated lies manufactured for the sole purpose of manipulating and exploiting families like ours. Because they are not providing full disclosure, families and individual blood donors are denied the opportunity to make a fully informed decision as to whether or not they wish to participate. This is morally and ethically wrong.
“In any event, in the minds of many ethicists, the testing suggests the arrival of a new eugenics, not state-run but voluntary. They debate whether it’s a “good or bad eugenics,” noting that before Adolf Hitler gave it a bad name, eugenics was science’s hope for a better future, the answer to economic inequities and social ills.”–Baylor Offers Fetal DNA Test Sheds Light, But Stirs an Ethical Battle by Todd Ackerman, Houston Chronicle
Families asked to participate in genetic research deserve honesty with the respect and right of full disclosure so as to avoid violating their personal ethics, religious and moral beliefs.
As a Christian mother devoted to protecting ALL unborn children, I would like to see legislation written to require Full Disclosure notification to all families and individuals, who are either solicited to participate or who are seeking inclusion in any genetic research project – as well as to all past and present participants. The whole truth must be provided so each and every participant fully understands the possibility their cooperation in efforts to identify specific genes could result – or already has resulted – in a screening test used to identify and abort unborn children who carry the same gene. It must be clearly given both verbally and in writing to each participant to prevent any individual from being unwittingly exploited. Anything less than full disclosure is unethical and unacceptable.
“Let it not seem to you that one of these little ones is of no value; for I say unto you that in heaven their angels see at all times the face of my Father in heaven.”–Matthew 18:10 (Bible in Basic English)
“The King will answer them, ‘I can guarantee this truth: Whatever you did for one of my brothers or sisters, no matter how unimportant [they seemed], you did for me’”–Matthew 25:40 (God’s Word Translation)
There is a clear choice to be made: either you believe in LIFE… or you believe it is OK to kill babies. Will you stand up for all unborn children – or look the other way? Please share this message with others.
God cherishes, each and every baby, born or unborn… so must we.